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Huntington’s Disease Care Coordinator

Band 6

Main area
Huntington’s Disease
Band 6
Fixed Term - 2 years
Part Time 15 hours per week
Job ref
To be completed on recruitment
£31,365 to £37,890 per annum pro rata
16/07/2020 23:59

If you relish a challenge, have a passion to help others or simply fancy a fresh start, then Betsi Cadwaladr University Health Board (BCUHB)  North Wales, has all the right ingredients. The largest health organisation in Wales, providing a full range of primary, community, mental health, acute and elective hospital services for a population of around 700,000, across North Wales . Join our team and get the support you need, in line with our Organisational Values and ‘Proud to Lead’ competence framework.

Enjoy being part of working with engaged leadership at all levels, and be assured we are committed to promoting equality and diversity, and are proud to welcome applicants under the “Disability Confident Employer” scheme. We also offer a number of family-friendly benefits, including childcare voucher schemes, work-life balance policies and on-site crèche facilities.

Visit our web site  Today:

Please check your email account regularly. Successful applicants will receive all recruitment related correspondence via the email account registered on the application form.

Applications may be submitted in Welsh.  Applications submitted in Welsh will not be treated less favourably than an application submitted in English.




The post holder is expected to be part of a small part of clinicians who work in the Huntington’s Disease Advisory Clinic. This is a tertiary care clinic who reviews pre- and symptomatic patients suffering from Huntington’s Disease. As this is an advisory clinic, the overall responsibility for the case remains with primary or secondary care.

Currently the clinic has input from two consultants psychiatrists: Dr. A. Salmoiraghi (Clinical Lead) and Dr. R. Sambhi. The post holder is expected to communicate and seek advice from both doctors. There is allocated administrative input.

The post holders will be expected to work together to:

Deliver local support to patients diagnosed with Huntington’s Disease (HD) in North Wales as a key worker.

Track patients along their disease pathway from diagnosis to end of life care.

Coordinate the local multidisciplinary care of patients with HD across North Wales in primary and secondary and Third Sector care ensuring patients can access high quality care that adheres to the best standards of care and best practice guidance.

Liaise with the the Huntington’s Disease tertiary care clinic for advice

To be a single point of contact for patients with HD, their carers and professionals as a resource for information advice and signposting.

 Co-ordinate ENROLL-HD research project in regards to recruitment and retention

For a full list of responsibilities please refer to Job Description.

The ability to speak Welsh is desirable for this post; Welsh and/or English speakers are equally welcome to apply.

Closing date: 16th July 2020

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Applicant requirements

This post is subject to the Rehabilitation of Offenders Act (Exceptions Order) 1975 and it will be necessary for a submission for Disclosure to be made to the Disclosure and Barring Service.

Welsh language skills are desirable

Documents to download

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Further details / informal visits contact

Alberto Salmoiraghi

Clinical Lead

03000 857920